Alzheimer's disease · Assisted living · Caregiver · Caregiving · Death · Disclosure

Assisted living, part 3 / September 26, 2006

The nurse from the assisted living facility visited us last Tuesday to evaluate my mother’s suitability for this type of living. I fretted deeply about this, despite trying to calm myself down by re-examining all my escape hatches (”This doesn’t mean she’ll have to move TOMORROW”, etc.). I eventually realized that my primary worry was… Continue reading Assisted living, part 3 / September 26, 2006

Alzheimer's disease · Bob Dylan · Burnout · Caregiver

“Knocking on heaven’s door” / September 16, 2006

Only over the past couple of months have I understood what is meant by “caregiver’s burnout.” Waking up each morning with a sick feeling in the pit of my stomach, going to bed at night with a head full of circling obligations and regrets. Catching myself in the middle of the rare pleasant experience and… Continue reading “Knocking on heaven’s door” / September 16, 2006

Alzheimer's disease · Caregiver · Caregiving · Disclosure · Emerson · Grief

Assisted living, part 2 / September 13, 2006

Next Tuesday a nurse from the assisted living home will evaluate my mother here at the house. I spoke to her on the phone today to set the time. She then asked me what my mother knows about the arrangements. Nothing. We have brought it up as a possibility with her, but I have still… Continue reading Assisted living, part 2 / September 13, 2006

Assisted living · Caregiver · Caregiving

Good stewards, part 1 / September 11, 2006

I’d like to repeat a comment that was left for me by Patty Doherty, one of the creators of The Unforgettable Fund. Answering just ONE of her questions requires one to be bravely empathetic. And until the most powerful members of our society can acknowledge and deeply empathize with the least powerful members (note Patty’s challenge,… Continue reading Good stewards, part 1 / September 11, 2006

Alzheimer's disease · Behavior · Brain · Caregiving · Language

Deja vu / September 6, 2006

I called my mother from work at the usual time this morning, and she was having the speech difficulties she often has when she’s upset by something. But she managed to say to me, “I have company today.” Using my best powers of interpretation, I guessed that she meant Eva, the homemaker. “No,” she said.… Continue reading Deja vu / September 6, 2006

Aid & Attendance · Assisted living · Caregiver · Caregiving

Ifs and whens / September 2, 2006

Several times this past week I’ve heard myself telling someone that my mother would probably be moving into assisted living fairly soon. Each time the words startled me–as if I were hearing someone else saying them. I don’t know when the “if” became “when”–or even if it truly has become “when”–but a part of me… Continue reading Ifs and whens / September 2, 2006